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This Q&A has been prepared to answer questions about HONEUR and related topics.
Real World Data and Real World Evidence – What’s the difference? Real World Data (RWD) is health data, usually created by healthcare professionals and also by patients, as part of routine health...
HONEUR’s principles Do you want to know more about HONEUR’s network principles? Check it out here.
RWE in practice Sweden – Since 1998, Sweden's national Cataract Registry has collected nationwide data on postoperative endophthalmitis (PE), which, although rare, results in blindness in between...
Our Mission To create a secure, collaborative platform that enables participants across Europe to liberate the transformational potential of Real World Data. Our Vision We want to help create a...
Join the network To join the HONEUR network, only few prerequisites are needed. Basically, any registry, hospital, physician association or any scientific institute with a dataset on patients with...
What is HONEUR? HONEUR stands for Haematology Outcomes Network in Europe. Historically, the network of data centres across Europe has often been duplicative and uncoordinated, so the...
Real World Data is critically important RWD is very different from data gathered in clinical trials. In clinical trials, strict basic conditions are applied to allow for the best comparability...
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Not found the answer you are looking for? Please contact Lars Halvorsen and / or Peter Moorthamer for all your HONEUR related technical questions.
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COVID-19 Update
27/08/2018 We are pleased to announce that the first site was contracted to the HONEUR network: Leicester Royal Infirmary is represented by Dr Mamta Garg, who is actively involved in research and...
27/09/2018 Our abstract “HONEUR (Haematology Outcomes Network in Europe) – A Federated Model to support Real World Data Research in Haematology” has been accepted at the Congress of the American...
05/10/2018 We are pleased to announce that we have signed the accession agreement to project HONEUR with Prof. Hajek from the Registry of Monoclonal Gammopathies (RMG) in the Czech Republic. The...
12/04/2019 Improving results for patients by realising the transformational potential of Real World Data BEERSE, BELGIUM, 11 April 2019 - The Janssen Pharmaceutical Companies of Johnson & Johnson...
This site is published by Janssen Pharmaceutica N.V., which is solely responsible for its content. This site is intended for the use of our visitors in Europe, the Middle East and Africa. Last...
01/09/2020 HONEUR’s new Interactive Patient Similarity Analysis and Visualisation Tool was accepted and published at EHA’s (European Haematology Association) 25th annual congress in June 2020. As...
17/12/2019 We're delighted to welcome six more data partners to join the HONEUR collaborative network of he Janssen Pharmaceutical Companies of Johnson & Johnson. HONEUR (Haematology Outcomes...
Objective: enabling the use of distributed statistics across federated data models
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CP-73766
What is HONEUR? Treating patients with haematological malignancies has progressed significantly in recent years, but extensive scientific research is still needed. Fortunately, there’s a huge...
HONEUR Network Data Partners Data Partner List
Our mission With HONEUR, we have created a secure, collaborative platform that enables partnering data centres across Europe, including Janssen, to liberate the transformational potential of...
Accelerated real-world data analysis and evidence sharing Federated network connectivity, data always stays local
How it works As shown below, each of the data partners in this example has the applications in place to interrogate their own data or to execute an analysis script that is developed centrally by...
How to become an HONEUR data partner HONEUR’s goal is to develop a network with diverse geographic coverage across Europe. Any registry, hospital, physicians’ association or scientific institute...
FAQs
Didn’t find the answer to your question here? Feel free to contact us We will enroll you as a data partner in accordance with our Privacy Policy and comply with any and all legal obligations.
What is HONEUR? HONEUR (Haematology Outcomes Network in Europe) is a Janssen-led initiative that is all about collaboration. Rather than creating a central data repository, the HONEUR federated...
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Federated data network of haematology centres: Centres maintain control of their data. Respect the rights of the individual: Data privacy (e.g. GDPR). Highest standards of ethical rigour: Ethics...
Privacy policy Janssen Phamaceutica N.V. cares about your privacy and wants you to be familiar with how we collect, use, and disclose information. This Privacy Policy describes our practices in...
Contact For general information: Kristina Bardenheuer, Project Lead kbardenh@its.jnj.com T: +49 172 415 9508 For technical information: Michel Van Speybroeck, Data Science Director...
Core principles HONEUR optimises how Real-World Data are analysed to speed-up the generation of Real-World Evidence HONEUR data partners share real-world insights that can contribute to...
Our investment in real world data Our compensation is based on Fair Market Value (FMV) and consists of three pillars: SET UP REMUNERATION When you join the network, we compensate your IT-based...
Join the network Any registry, hospital, physicians’ association or scientific institute with a data set on patients with haematological malignancies that fulfills certain prerequisites can...
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HONEUR’s cross-functional team Steering committee Martin Price PhD Outcomes Research, Vice President Health Economics Outcomes Research and Reimbursement EMEA Executive Sponsor Clare Hague PhD...
PHDE/NPR/0918/00086
Research questions Data partners can choose to initiate their own questions and participate (or not) in those posed by other data partners. These are just a few examples; as HONEUR evolves,...
HONEUR materials HONEUR Brochure ITEM CODE: CP-164559 Download the brochure Why Join HONEUR? ITEM CODE: CP-171285 Learn six ways how you can harness the power of HONEUR SAM: 5833 Learn how...
Welcome to HONEUR What HONEUR Is About
Welcome to HONEUR What HONEUR Is About
Cookie policy This Cookie Policy is designed to tell you about our practices regarding the collection of information through cookies and other tracking technologies (like gifs, web beacons, etc.)....
ITEM CODE: CP-241082 | DATE OF PREPARATION: JUNE 2021
What data partners are saying "Building on our tradition of high quality standards and excellence in research, 12 de Octubre University Hospital is committed to collaborating in initiatives that...
HONEUR data partners Czech Republic - CLLEAR More... The CLLEAR database is hosted by the Czech CLL Study Group and the Czech Leukemia Study group and collects deep insights of medical records...
Data partner benefits Collaboration with full data control – data always stays local Strengthened ability to perform high quality research as part of a federated network Compensation of...