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This Q&A has been prepared to answer questions about HONEUR and related topics.

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CP-73766

How it works As shown below, each of the data partners in this example has the applications in place to interrogate their own data or to execute an analysis script that is developed centrally by...

How to become an HONEUR data partner HONEUR’s goal is to develop a network with diverse geographic coverage across Europe. Any registry, hospital, physicians’ association or scientific institute...

FAQs

<p>HONEUR (Haematology Outcomes Network in Europe) is a Janssen-led initiative that is all about collaboration. Rather than creating a central data repository, the HONEUR federated data network...

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Core principles HONEUR optimises how Real-World Data are analysed to speed-up the generation of Real-World Evidence HONEUR data partners share real-world insights that can contribute to...

Our investment in real world data Our compensation is based on Fair Market Value (FMV) and consists of three pillars: SET UP REMUNERATION When you join the network, we compensate your IT-based...

Join the network Any registry, hospital, physicians’ association or scientific institute with a data set on patients with haematological malignancies that fulfills certain prerequisites can become...

Research questions Data partners can choose to initiate their own questions and participate (or not) in those posed by other data partners. These are just a few examples; as HONEUR evolves, answers...

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ITEM CODE: CP-241082 | DATE OF PREPARATION: JUNE 2021

ITEM CODE: RF-247386 | DATE OF PREPARATION: NOVEMBER 2022

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Objective: enabling the use of distributed statistics across federated data models

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HONEUR Newsletter - Winter 2022 edition

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Privacy policy Janssen Phamaceutica N.V. cares about your privacy and wants you to be familiar with how we collect, use, and disclose information. This Privacy Policy describes our practices in...

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Our Mission To create a secure, collaborative platform that enables participants across Europe to liberate the transformational potential of Real World Data. Our Vision We want to help create a...

Federated data network of haematology centres: Centres maintain control of their data. Respect the rights of the individual: Data privacy (e.g. GDPR). Highest standards of ethical rigour: Ethics...

Join the network To join the HONEUR network, only few prerequisites are needed. Basically, any registry, hospital, physician association or any scientific institute with a dataset on patients with...

Legal notice All content of this Internet site is owned or controlled by Janssen Pharmaceutica N.V. and is protected by worldwide copyright laws. You may download content only for your personal use...

RWE in practice Sweden – Since 1998, Sweden's national Cataract Registry has collected nationwide data on postoperative endophthalmitis (PE), which, although rare, results in blindness in between...

What is HONEUR? HONEUR stands for Haematology Outcomes Network in Europe. Historically, the network of data centres across Europe has often been duplicative and uncoordinated, so the...

Real World Data is critically important RWD is very different from data gathered in clinical trials. In clinical trials, strict basic conditions are applied to allow for the best comparability...

Didn’t find the answer to your question here? Feel free to contact us We will enroll you as a data partner in accordance with our Privacy Policy and comply with any and all legal obligations.

Real World Data and Real World Evidence – What’s the difference? Real World Data (RWD) is health data, usually created by healthcare professionals and also by patients, as part of routine health...

HONEUR’s principles Do you want to know more about HONEUR’s network principles? Check it out here.

  HONEUR data partners Czech Republic - CLLEAR More... The Chronic lymphocytic leukemia (CLL) patients registry (CLLEAR) is a registry hosted by the Czech CLL Study Group and the Czech Leukemia...

Cookie policy This Cookie Policy is designed to tell you about our practices regarding the collection of information through cookies and other tracking technologies (like gifs, web beacons, etc.)....

What data partners are saying "Building on our tradition of high quality standards and excellence in research, 12 de Octubre University Hospital is committed to collaborating in initiatives that...

HONEUR materials HONEUR Brochure ITEM CODE: CP-164559 Download the brochure Why Join HONEUR? ITEM CODE: CP-171285 Learn six ways how you can harness the power of HONEUR SAM: 5833 Learn how HONEUR’s...