On Oct 9, 2018 12:42 PM

Go to public sitemap

On Sep 17, 2018 7:29 PM

HONEUR Meeting

On Sep 17, 2018 3:54 PM

This Q&A has been prepared to answer questions about HONEUR and related topics.

On Jan 30, 2019 10:56 AM

Terms of Use

On Apr 16, 2020 1:50 PM

COVID-19 Update

News

On Feb 4, 2019 7:24 PM

CP-73766

On Aug 5, 2020 8:27 AM

How it works As shown below, each of the data partners in this example has the applications in place to interrogate their own data or to execute an analysis script that is developed centrally by...

How to become an HONEUR data partner HONEUR’s goal is to develop a network with diverse geographic coverage across Europe. Any registry, hospital, physicians’ association or scientific institute...

On Aug 6, 2020 2:48 PM

FAQs

On Sep 17, 2018 3:53 PM

<p>HONEUR (Haematology Outcomes Network in Europe) is a Janssen-led initiative that is all about collaboration. Rather than creating a central data repository, the HONEUR federated data network...

On May 5, 2020 2:18 PM

We use cookies to allow our site to work properly and to analyse our traffic. Please click “Accept cookies” or continue to use our site if you agree to our use of cookies. Technical Cookies...

On Aug 5, 2020 8:31 AM

Contact For general information: Kristina Bardenheuer, Project Lead kbardenh@its.jnj.com T: +49 172 415 9508 For technical information: Michel Van Speybroeck, Data Science Director...

On Aug 5, 2020 8:26 AM

Core principles HONEUR optimises how Real-World Data are analysed to speed-up the generation of Real-World Evidence HONEUR data partners share real-world insights that can contribute to...

Our investment in real world data Our compensation is based on Fair Market Value (FMV) and consists of three pillars: SET UP REMUNERATION When you join the network, we compensate your IT-based...

Join the network Any registry, hospital, physicians’ association or scientific institute with a data set on patients with haematological malignancies that fulfills certain prerequisites can become...

Research questions Data partners can choose to initiate their own questions and participate (or not) in those posed by other data partners. These are just a few examples; as HONEUR evolves, answers...

On Sep 17, 2018 12:44 PM

custom custom {"alt":"Welcome to HONEUR","fileEntryId":"536806","groupId":"20126","name":"welcome_to_honeur_poster (1).jpg","resourcePrimKey":"47027","title":"welcome_to_honeur_poster...

On Jun 30, 2021 9:07 AM

ITEM CODE: CP-241082 | DATE OF PREPARATION: JUNE 2021

On Dec 19, 2022 10:03 AM

ITEM CODE: RF-247386 | DATE OF PREPARATION: NOVEMBER 2022

On Nov 20, 2018 3:34 PM

{"alt":"Czech Myeloma Group","fileEntryId":"529791","groupId":"20126","name":"CMG.png","resourcePrimKey":"46786","title":"CMG.png","type":"journal","uuid":"80ec1aab-2ae3-0196-b873-1dbdc10b53cb"} We...

On Sep 17, 2018 7:23 PM

{"alt":"American Society of...

{"alt":"Contract","fileEntryId":"536366","groupId":"20126","name":"pexels-cytonn-photography-955394.jpg","resourcePrimKey":"141357","title":"pexels-cytonn-photography-955394.jpg","type":"journal","...

{"alt":"Handshake","fileEntryId":"529958","groupId":"20126","name":"handshake_compressed.jpg","resourcePrimKey":"71916","title":"handshake_compressed.jpg","type":"journal","uuid":"e2f6e6c7-c304-f89...

On Sep 21, 2018 7:51 AM

{"alt":"Leicester Royal Infirmary","fileEntryId":"529758","groupId":"20126","name":"Leicester Royal Infirmary.jpg","resourcePrimKey":"46834","title":"Leicester Royal...

Objective: enabling the use of distributed statistics across federated data models

{"alt":"EHA","fileEntryId":"536343","groupId":"20126","name":"EHA_logo.jpg","resourcePrimKey":"234550","title":"EHA_logo.jpg","type":"journal","uuid":"9ef38631-9d90-6317-c220-69e59f507b7d"}...

On Dec 19, 2022 9:13 AM

{"alt":"\/","fileEntryId":"536085","groupId":"20126","name":"CAR-T.PNG","resourcePrimKey":681974,"title":"CAR-T.PNG","type":"document","uuid":"967392f8-7c5b-b7ee-cf98-b46570769661"} We are excited...

{"alt":"Join the...

{"alt":"Pie chart","fileEntryId":"618814","groupId":"20126","name":"image-003.png","resourcePrimKey":681639,"title":"image-003.png","type":"document","uuid":"263cb00f-7771-d65e-3240-b0b4dfb02e11"}...

{"alt":"handshake","fileEntryId":"46529","groupId":"20126","name":"handshake.png","resourcePrimKey":682122,"title":"handshake.png","type":"document","uuid":"d04a27b3-0441-04c5-097c-505ebfa5d319"}...

{"alt":"OIS","fileEntryId":"618770","groupId":"20126","name":"ois.png","resourcePrimKey":682373,"title":"ois.png","type":"document","uuid":"21f856a2-8f50-130a-4175-553cedb59ce4"} We are pleased to...

On Dec 19, 2022 10:29 AM

{"alt":"handshake","fileEntryId":"46529","groupId":"20126","name":"handshake.png","resourcePrimKey":682321,"title":"handshake.png","type":"document","uuid":"d04a27b3-0441-04c5-097c-505ebfa5d319"}...

{"alt":"CHU...

{"alt":"handshake","fileEntryId":"46529","groupId":"20126","name":"handshake.png","resourcePrimKey":682402,"title":"handshake.png","type":"document","uuid":"d04a27b3-0441-04c5-097c-505ebfa5d319"}...

On Dec 12, 2022 1:02 PM

HONEUR Newsletter - Winter 2022 edition

{"alt":"Honeur...

{"alt":"picture for news article 'HONEUR’s very first Forum Meeting was a success","classNameId":33322,"description":"picture for news article 'HONEUR’s very first Forum Meeting was a...

{"alt":"Cardiff and Vale...

{"alt":"HONEUR Working Charter officially released!","fileEntryId":"70500","groupId":"20126","name":"What is HONEUR_compressed.jpg","resourcePrimKey":682081,"title":"What is...

On Dec 19, 2022 10:15 AM

{"alt":"honeur_logo_news","fileEntryId":"619428","groupId":"20126","name":"honeur_logo_news.png","resourcePrimKey":682191,"title":"honeur_logo_news","type":"document","uuid":"c6407209-d5ee-20a6-c71...

{"alt":"Second scientific publication on HONEUR picture","fileEntryId":"619440","groupId":"20126","name":"Second scientific publication on HONEUR...

{"alt":"First scientific publication on the value of FDNs! picture","fileEntryId":"619436","groupId":"20126","name":"First scientific publication on the value of FDNs!...

On Oct 22, 2018 9:34 AM

Privacy policy Janssen Phamaceutica N.V. cares about your privacy and wants you to be familiar with how we collect, use, and disclose information. This Privacy Policy describes our practices in...

{"alt":"network expansion picture - article 15_11_2021","fileEntryId":"619444","groupId":"20126","name":"network expansion picture - article...

{"alt":"network mapping expansion ","fileEntryId":"619448","groupId":"20126","name":"network mapping expansion - article 19_03_2021.png","resourcePrimKey":682333,"title":"network mapping expansion...

On Sep 17, 2018 12:47 PM

Our Mission To create a secure, collaborative platform that enables participants across Europe to liberate the transformational potential of Real World Data. Our Vision We want to help create a...

On Sep 17, 2018 3:45 PM

Federated data network of haematology centres: Centres maintain control of their data. Respect the rights of the individual: Data privacy (e.g. GDPR). Highest standards of ethical rigour: Ethics...

On Sep 21, 2018 7:07 AM

Join the network To join the HONEUR network, only few prerequisites are needed. Basically, any registry, hospital, physician association or any scientific institute with a dataset on patients with...

On Oct 22, 2018 9:11 AM

Legal notice All content of this Internet site is owned or controlled by Janssen Pharmaceutica N.V. and is protected by worldwide copyright laws. You may download content only for your personal use...

On Oct 11, 2018 7:32 PM

RWE in practice Sweden – Since 1998, Sweden's national Cataract Registry has collected nationwide data on postoperative endophthalmitis (PE), which, although rare, results in blindness in between...

On Sep 21, 2018 6:48 AM

What is HONEUR? HONEUR stands for Haematology Outcomes Network in Europe. Historically, the network of data centres across Europe has often been duplicative and uncoordinated, so the...

On Sep 20, 2018 7:51 PM

Real World Data is critically important RWD is very different from data gathered in clinical trials. In clinical trials, strict basic conditions are applied to allow for the best comparability...

On Sep 17, 2018 3:50 PM

Didn’t find the answer to your question here? Feel free to contact us We will enroll you as a data partner in accordance with our Privacy Policy and comply with any and all legal obligations.

On Sep 20, 2018 7:41 PM

Real World Data and Real World Evidence – What’s the difference? Real World Data (RWD) is health data, usually created by healthcare professionals and also by patients, as part of routine health...

On Oct 11, 2018 7:26 PM

HONEUR’s principles Do you want to know more about HONEUR’s network principles? Check it out here.

On Aug 5, 2020 8:26 AM

  HONEUR data partners Czech Republic - CLLEAR More... The Chronic lymphocytic leukemia (CLL) patients registry (CLLEAR) is a registry hosted by the Czech CLL Study Group and the Czech Leukemia...

On Oct 22, 2018 9:40 AM

Cookie policy This Cookie Policy is designed to tell you about our practices regarding the collection of information through cookies and other tracking technologies (like gifs, web beacons, etc.)....

What data partners are saying "Building on our tradition of high quality standards and excellence in research, 12 de Octubre University Hospital is committed to collaborating in initiatives that...