How to become an HONEUR data partner
How to become an HONEUR data partner
HONEUR´s goal is to develop a network with diverse geography coverage accross Europe. Any registry or scientific institute with patient level data for haematological malignancies can become a partner.
You can benefit from network participation if you fulfil the following prerequisites:
Patient-level data
comprehensive, individual patient history
Disease characteristics
confirmed diagnosis and date of diagnosis
Patient baseline characteristics
year of birth and gender
Medications
lines of treatment with start-stop dates
Outcomes
time to next treatment, last follow-up, death
What are the steps to join HONEUR?
2
Meeting (phone or in person) for Q&A and to provide more information
3
Data profiling to determine structure (no access to patient data)
4
Signing of Access Agreement
5
Data transformation*, use of HONEUR technical functionalities
6
Access to HONEUR portal; ready to participate/initiate research questions
ITEM CODE: CP-533648 | DATE OF PREPARATION: JULY 2025