How to become an HONEUR data partner

HONEUR´s goal is to develop a network with diverse geography coverage accross Europe. Any registry or scientific institute with patient level data for haematological malignancies can become a partner.

You can benefit from network participation if you fulfil the following prerequisites:

 

Patient-level data

comprehensive, individual patient history

 

Disease characteristics

confirmed diagnosis and date of diagnosis

 

Patient baseline characteristics

year of birth and gender

 

Medications

lines of treatment with start-stop dates

 

Outcomes

time to next treatment, last follow-up, death

What are the steps to join HONEUR?

1
Contact HONEUR Leads
2
Meeting (phone or in person) for Q&A and to provide more information
3
Data profiling to determine structure (no access to patient data)
4
Signing of Access Agreement
5
Data transformation*, use of HONEUR technical functionalities
6
Access to HONEUR portal; ready to participate/initiate research questions

ITEM CODE: CP-533648 | DATE OF PREPARATION: JULY 2025