HONEUR data partners
Czech Republic - CLLEAR
The CLLEAR database is hosted by the Czech CLL Study Group and the Czech Leukemia Study group and collects deep insights of medical records of CLL patients from 10 Czech Republic centers.
Website:
http://www.cll.cz/cs/obsah/registr
https://www.leukemia-cell.org/index-en.php?pg=cllear
Czech Republic - RMG
The Registry of Monoclonal Gammopathies (RMG) owned by the Czech Myeloma Study Group (CMG) collects medical records of multiple myeloma and other monoclonal gammopathies patient from 24 Czech Republic and Slovak Republic Hematology centers.
Website:
https://rmg.healthregistry.org/
France - CHU Montpellier
CHU Montpellier is a French University hospital center focused on care, teaching and research but also prevention and health education. It is organized around 7 research institute centers specialized in all aspects of cancer research (genetics, cell therapy, immunotherapy, patient care,…) in the North-east of Montpellier and collects medical records of MM, CLL and lymphoma patients.
Website:
https://www.chu-montpellier.fr/
France - University Hospital Center Dijon
France - CHU Lille
Germany - iOMEDICO
The German clinical research institute iOMEDICO is specialized on interventional and real-world data studies in oncology and hematology, working with a large, intersectoral network of hospitals and private clinics in Germany. Two of iOMEDICO’s cohort studies collecting longitudinal data on patients with multiple myeloma or lymphoma since 2009 are part of the HONEUR network.
Website:
https://www.iomedico.com/
Germany - O.I.s)
O.I.s) is providing longitudinal real-world data in solid tumors and hematological malignancies in the EUCAN region based on a representative samples of institutions and achieving ~10% of treated prevalence.
It has established an international network of caregivers from academia, non-academic clinics and specialized practices. Ever since O.I.s) was founded more than 25 years ago, its scope and vision was to deep-dive into complex oncology/hematology real-world data, to analyze treatment algorithms and adherence to clinical guidelines - with the ever-present objective to improve cancer care in the real world.
Italy - IRST of Meldola
Italy - The University of Perugia's Department of Medicine
Kazakhstan - The Kazakh Institute of Oncology and Radiology
Spain - Lozano Blesa University Hospital
Lozano Blesa University Hospital is part of IIS Aragón, a Health Research Institute for the Health Department of the Aragón regional Government. The Lozano Blesa Hematology Study Group focuses on hematoncology malignancies and iomunotherapy in translational lymphoma research.
Spain - Research Institute Hospital 12 de Octubre
The Research Institute Hospital 12 de Octubre is conceived as a functional structure of multidisciplinary and translational biomedical research focused on basic, clinical, epidemiological and health service research. i+12 Institute collects medical records of multiple myeloma and leukemia patients.
UK - Cancer Center London
UK - University Hospitals Leicester NHS
University Hospitals Leicester NHS trust is undertaking an audit on presentation treatment response and survival in patients with multiple myeloma and plan to use HONEUR platform for data analysis.