Data partners
HONEUR data partners

Czech Republic - CLLEAR
The Chronic lymphocytic leukemia (CLL) patients registry (CLLEAR) is a registry hosted by the Czech CLL Study Group and the Czech Leukemia Study group and collects deep insights of medical records of CLL patients from 10 Czech Republic hospitals and centers.
Website:
https://www.leukemia-cell.org/index-en.php?pg=cllear

Czech Republic - RMG
The Registry of Monoclonal Gammopathies (RMG), established by the Czech Myeloma Study Group (CMG), is a registry designed for the collection of clinical data from 23 CZ and SK Hematology centers concerning diagnosis, treatment, treatment results and survival of patients with MGUS, MM, and SMM.
Website:
https://rmg.healthregistry.org/

France - CHU Dijon Bourgogne
The University Hospital Center of Dijon Bourgogne is a large center that offers public emergency service, diagnosis, care and prevention. CHU Dijon is well-establihed in the provision of first-class and comprehensive hematological malignancy treatment, and is the only center in the Burgundy region that has the capabilities to provide heavy therapy treatment for certain blood diseases.
Website:
https://www.chu-dijon.fr/

France - CHU Lille
With nearly 16,000 professionals and being made up of 13 establishments, the Lille University Hospital Center is one of the largest public health establishments in Northern Europe.
Website:
https://www.chu-lille.fr/

France - CHU Montpellier
CHU Montpellier is a French University hospital center focused on care, teaching and research, but also prevention, health education and the fight against social exclusion. It is organized around 13 university hospital centers grouping all medical and surgical specialties and spread over several geographical sites north-east of Montpellier.
Website:
https://www.chu-montpellier.fr/

France - Myelomatoul/Oncopole Toulouse
The IUCT Oncopole comprises the Institut Claudius Regaud, a cancer center, and several teams from Toulouse University Hospital Center. The two institutions offer the expertise of 1500 professionals specialized in oncology on the same site. The site specializes in a variety of rare and complex diseases, including haematological cancers, and has a large medical database on various blood cancers.
Website:
https://www.iuct-oncopole.fr/

Germany - iOMEDICO
iOMEDICO is a German clinical research institute and clinical research organization that works with a large, intersectoral network of hospitals and private clinics in Germany, and specializes in interventional and real-world data studies in oncology and hematology. HONEUR works with two of iOMEDICO's registry platforms that predominantly collect longitudinal data on myeloma and lymphoma patients.
Website:
https://www.iomedico.com/

Germany - MVZ Study Centre Cologne
Since it was founded in 1997, Oncology at Sachsenring has built up a close network of cooperation partners and its own study center. The oncologists at the MVZ Study Center Cologne are committed to holistic treatment of a malignant disease and are therefore the primary contact for all aspects of cancer. In the spirit of "holistic care", Oncology Cologne have therefore developed some additional offers, which include social counseling, psychosocial care, nutritional therapy, sports offers and others. Furthermore, oncology Cologne works very closely in various tumor conferences with several hospitals and all-important specialist disciplines.
Website:
https://www.onkologie-koeln.de/

Germany - O.I.s)
O.I.s) is providing longitudinal real-world data in solid tumors and hematological malignancies in the EUCAN region based on a representative samples of institutions and achieving ~10% of treated prevalence. It has established an international network of caregivers from academia, non-academic clinics and specialized practices. Ever since O.I.s) was founded more than 25 years ago, its scope and vision was to deep-dive into complex oncology/hematology real-world data, to analyze treatment algorithms and adherence to clinical guidelines - with the ever-present objective to improve cancer care in the real world. O.I.s) has large databases on a variety of haematological malignancies, including myelomas, myeloids, and lymphomas, amongst others.

Germany - UK Wurzburg
The University Hospital Würzburg> is a pioneer in medical care, research and teaching. Their hematology department is very research-oriented, and focuses on the development of new therapeutic approaches. With their Multiple Myeloma sstudy group that consists of more than 2500 patients, they are partiuclarly strong in Multiple Myeloma research.
Website:
https://www.ukw.de/startseite/

Italy - IRST of Meldola
The Romagnolo Institute for the Study of Tumors "Dino Amadori" - IRST is a center of excellence entirely dedicated to treatment, research and training in the oncology field. Since its inauguration in 2007, IRST IRCCS has broken new ground in multiple areas of cancer research, with clinical, research programs, and high-level training and education initiatives. The center has a strong interest in hematological research and collects medical patient records on a variety of blood cancers.
Website:
https://www.irst.emr.it/it/

Kazakhstan - The Kazakh Institute of Oncology and Radiology
The Kazakh Research Institute of Oncology & Radiology is responsible for all cancer control programs in Kazakhstan. The institute provides a multidisciplinary approach to cancer treatment, education and training. They play a big role in cancer policy in Kazakhstan.
Website:
https://www.uicc.org/membership/kazakh-institute-oncology-and-radiology

Spain - Hospital del Mar
IMIM (Hospital del Mar Medical Research Institute) is a research-focused institute that consists of 60 research groups, of which two are specifically focused on haematological (lymphoid and myeloid) research. They collect patient data on a variety of haematological malignancies, with a predominant focus on lymphomas. The hospital is one of the biggest sites in Spain in eHealth research, which is also actively contributing to other projects such as EHDEN and HARMONY.
Website:
https://www.parcdesalutmar.cat/en/hospitals/hospital-del-mar/

Spain - La Fe
Health Research Institute Hospital La Fe is a public sector initiative made up of 6 entities within the Valencia region. Its Hematology Research Group has a well-proven track record, collaborates with a variety of national and international partners on especially leukemia research projects.
Website:
http://www.hospital-lafe.com/

Spain - Lozano Blesa University Hospital (IIS Aragón)
Lozano Blesa University Hospital is part of IIS Aragón, a Health Research Institute for the Health Department of the Aragón regional Government. The Lozano Blesa Hematology Study Group focuses on hematoncology malignancies and iomunotherapy in translational lymphoma research.
Website:
https://www.iisaragon.es/

Spain - Research Institute Hospital 12 de Octubre
The Research Institute Hospital 12 de Octubre is conceived as a functional structure of multidisciplinary and translational biomedical research focused on basic, clinical, epidemiological and health service research.

Tel Aviv - Medical Center Ichilov
Tel Aviv Sourasky Medical Center's division of hematology provides expert care for patients with a variety of blood disorders, including malignant hematological diseases such as acute and chronic leukemias, MDS (myelodysplastic syndromes), multiple myeloma, and Hodgkin's and non-Hodgkin's lymphoma, and is affiliated with the Sackler Faculty of Medicine of the Tel Aviv University for leading-edge scientific and clinical research and ongoing medical education.
Website:
https://www.tasmc.org.il/sites/en/Pages/default.aspx

UK - Cancer Center London
Cancer Centre London (CCL) is at the forefront of innovative cancer care and a recognised Centre of Excellence. The centre has a well-established Haemato-Oncology Unit where they treat a wide range of haematological disorders, including leukemia, lymphoma, and myeloma.
Website:
https://cancercentrelondon.co.uk/

UK - University Hospitals Leicester NHS
University Hospitals Leicester NHS is one of the biggest and busiest NHS Trusts in the country, and works with many different organisations throughout the world to push the boundaries of research. They deliver a wide range of Cancer and Haematology National Institute of Health Research (NIHR) studies and are part of the Myeloma UK Clinical Trials Network.

UK - Cardiff and Vale University Health Board
Cardiff and Vale University Health Board includes the University Hospital of Wales and has strong links to Cardiff University. UHW is a large 900 bed teaching hospital in the capital city of Wales which provides haematological cancer care for the surrounding population. UHW has a strong track record in clinical trial and routine NHS care.
Website:
https://cavuhb.nhs.wales/about-us/
ITEM CODE: RF-243987 | DATE OF PREPARATION: NOVEMBER 2022