Our Mission To create a secure, collaborative platform that enables participants across Europe to liberate the transformational potential of Real World Data. Our Vision We want to help create a...

Join the network To join the HONEUR network, only few prerequisites are needed. Basically, any registry, hospital, physician association or any scientific institute with a dataset on patients with...

What is HONEUR? HONEUR stands for Haematology Outcomes Network in Europe. Historically, the network of data centres across Europe has often been duplicative and uncoordinated, so the...

Real World Data is critically important RWD is very different from data gathered in clinical trials. In clinical trials, strict basic conditions are applied to allow for the best comparability...

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We are pleased to announce that the first site was contracted to the HONEUR network: Leicester Royal Infirmary is represented by Dr Mamta Garg, who is actively involved in research and functions as...

Our abstract “HONEUR (Haematology Outcomes Network in Europe) – A Federated Model to support Real World Data Research in Haematology” has been accepted at the Congress of the American Society of...

We are pleased to announce that we have signed the accession agreement to project HONEUR with Prof. Hajek from the Registry of Monoclonal Gammopathies (RMG) in the Czech Republic. The RMG, which is...

Improving results for patients by realising the transformational potential of Real World Data BEERSE, BELGIUM, 11 April 2019 - The Janssen Pharmaceutical Companies of Johnson & Johnson have...

HONEUR’s new Interactive Patient Similarity Analysis and Visualisation Tool was accepted and published at EHA’s (European Haematology Association) 25th annual congress in June 2020. As every...

We're delighted to welcome six more data partners to join the HONEUR collaborative network of he Janssen Pharmaceutical Companies of Johnson & Johnson. HONEUR (Haematology Outcomes Network in...

Objective: enabling the use of distributed statistics across federated data models

News

CP-73766

What is HONEUR? Treating patients with haematological malignancies has progressed significantly in recent years, but extensive scientific research is still needed. Fortunately, there’s a huge...

Our mission With HONEUR, we have created a secure, collaborative platform that enables partnering data centres across Europe, including Janssen, to liberate the transformational potential of...

Accelerated real-world data analysis and evidence sharing Federated network connectivity, data always stays local

How it works As shown below, each of the data partners in this example has the applications in place to interrogate their own data or to execute an analysis script that is developed centrally by...

How to become an HONEUR data partner HONEUR’s goal is to develop a network with diverse geographic coverage across Europe. Any registry, hospital, physicians’ association or scientific institute...

FAQs

Didn’t find the answer to your question here? Feel free to contact us We will enroll you as a data partner in accordance with our Privacy Policy and comply with any and all legal obligations.

What is HONEUR? HONEUR (Haematology Outcomes Network in Europe) is a Janssen-led initiative that is all about collaboration. Rather than creating a central data repository, the HONEUR federated...

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Federated data network of haematology centres: Centres maintain control of their data. Respect the rights of the individual: Data privacy (e.g. GDPR). Highest standards of ethical rigour: Ethics...

Privacy policy Janssen Phamaceutica N.V. cares about your privacy and wants you to be familiar with how we collect, use, and disclose information. This Privacy Policy describes our practices in...

Core principles HONEUR optimises how Real-World Data are analysed to speed-up the generation of Real-World Evidence HONEUR data partners share real-world insights that can contribute to...

Our investment in real world data Our compensation is based on Fair Market Value (FMV) and consists of three pillars: SET UP REMUNERATION When you join the network, we compensate your IT-based...

Join the network Any registry, hospital, physicians’ association or scientific institute with a data set on patients with haematological malignancies that fulfills certain prerequisites can become...

Legal notice All content of this Internet site is owned or controlled by Janssen Pharmaceutica N.V. and is protected by worldwide copyright laws. You may download content only for your personal use...

PHDE/NPR/0918/00086

Research questions Data partners can choose to initiate their own questions and participate (or not) in those posed by other data partners. These are just a few examples; as HONEUR evolves, answers...

HONEUR materials HONEUR Brochure ITEM CODE: CP-164559 Download the brochure Why Join HONEUR? ITEM CODE: CP-171285 Learn six ways how you can harness the power of HONEUR SAM: 5833 Learn how HONEUR’s...

Welcome to HONEUR Welcome to HONEUR custom /documents/20126/0/Welcome+to+HONEUR+video.mp4/855841f1-0243-517e-26ff-4d3dba58eae3?t=1610628682269 What HONEUR Is About What HONEUR Is About custom...

Cookie policy This Cookie Policy is designed to tell you about our practices regarding the collection of information through cookies and other tracking technologies (like gifs, web beacons, etc.)....

ITEM CODE: CP-241082 | DATE OF PREPARATION: JUNE 2021

What data partners are saying "Building on our tradition of high quality standards and excellence in research, 12 de Octubre University Hospital is committed to collaborating in initiatives that...

  Data partner benefits   Collaboration with full data control – data always stays local   Strengthened ability to perform high quality research as part of a federated network   Compensation of...

ITEM CODE: RF-243987 | DATE OF PREPARATION: NOVEMBER 2022

We are proud to share with you that we currently have over 56.000 patients from 12 HONEUR sites mapped in the HONEUR network. Nearly 43.000 of these are multiple myeloma patients. Of the total...

We are excited to inform you that our study abstract on lenalidomide exposed RRMM patients has been accepted for poster presentation at the 64th annual ASH Conference in December 2022! Using...

ITEM CODE: RF-247386 | DATE OF PREPARATION: NOVEMBER 2022

We had our very first HONEUR Board meeting on 23 September 2022! Thank you to our HONEUR Board members for their engagement and input! It is an honour having you on board. Our HONEUR Board consists...

We are delighted to welcome our 20th Data Partner into the HONEUR network: University Hospital Würzburg, Germany! The University Hospital Würzburg is a pioneer in medical care, research and...

HONEUR has launched its minimum viable product, called “Disease Trajectory Analyzer” (DiTrAn). DiTrAn is a disease-agnostic framework for analysis and visualization of clinical event models...

It brings us great pleasure to share that we have signed the contract with three additional sites to project HONEUR. With these three sites added to the network, HONEUR now has 14 data partners! We...