RWE in practice Sweden – Since 1998, Sweden's national Cataract Registry has collected nationwide data on postoperative endophthalmitis (PE), which, although rare, results in blindness in between...

Our Mission To create a secure, collaborative platform that enables participants across Europe to liberate the transformational potential of Real World Data. Our Vision We want to help create a...

Join the network To join the HONEUR network, only few prerequisites are needed. Basically, any registry, hospital, physician association or any scientific institute with a dataset on patients with...

What is HONEUR? HONEUR stands for Haematology Outcomes Network in Europe. Historically, the network of data centres across Europe has often been duplicative and uncoordinated, so the...

Real World Data is critically important RWD is very different from data gathered in clinical trials. In clinical trials, strict basic conditions are applied to allow for the best comparability...

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We are pleased to announce that the first site was contracted to the HONEUR network: Leicester Royal Infirmary is represented by Dr Mamta Garg, who is actively involved in research and functions as...

Our abstract “HONEUR (Haematology Outcomes Network in Europe) – A Federated Model to support Real World Data Research in Haematology” has been accepted at the Congress of the American Society of...

We are pleased to announce that we have signed the accession agreement to project HONEUR with Prof. Hajek from the Registry of Monoclonal Gammopathies (RMG) in the Czech Republic. The RMG, which is...

Improving results for patients by realising the transformational potential of Real World Data BEERSE, BELGIUM, 11 April 2019 - The Janssen Pharmaceutical Companies of Johnson & Johnson have...

HONEUR’s new Interactive Patient Similarity Analysis and Visualisation Tool was accepted and published at EHA’s (European Haematology Association) 25th annual congress in June 2020. As every...

We're delighted to welcome six more data partners to join the HONEUR collaborative network of he Janssen Pharmaceutical Companies of Johnson & Johnson. HONEUR (Haematology Outcomes Network in...

Objective: enabling the use of distributed statistics across federated data models

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CP-73766

What is HONEUR? Treating patients with haematological malignancies has progressed significantly in recent years, but extensive scientific research is still needed. Fortunately, there’s a huge...

Our mission With HONEUR, we have created a secure, collaborative platform that enables partnering data centres across Europe, including Janssen, to liberate the transformational potential of...

Accelerated real-world data analysis and evidence sharing Federated network connectivity, data always stays local

How it works As shown below, each of the data partners in this example has the applications in place to interrogate their own data or to execute an analysis script that is developed centrally by...

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Federated data network of haematology centres: Centres maintain control of their data. Respect the rights of the individual: Data privacy (e.g. GDPR). Highest standards of ethical rigour: Ethics...

Privacy policy Janssen Phamaceutica N.V. cares about your privacy and wants you to be familiar with how we collect, use, and disclose information. This Privacy Policy describes our practices in...

Core principles HONEUR optimises how Real-World Data are analysed to speed-up the generation of Real-World Evidence HONEUR data partners share real-world insights that can contribute to...

Our investment in real world data Our compensation is based on Fair Market Value (FMV) and consists of three pillars: SET UP REMUNERATION When you join the network, we compensate your IT-based...

Join the network Any registry, hospital, physicians’ association or scientific institute with a data set on patients with haematological malignancies that fulfills certain prerequisites can become...

PHDE/NPR/0918/00086

HONEUR materials HONEUR Brochure ITEM CODE: CP-164559 Download the brochure Why Join HONEUR? ITEM CODE: CP-171285 Learn six ways how you can harness the power of HONEUR SAM: 5833 Learn how HONEUR’s...

Welcome to HONEUR Welcome to HONEUR custom /documents/20126/0/Welcome+to+HONEUR+video.mp4/855841f1-0243-517e-26ff-4d3dba58eae3?t=1610628682269 What HONEUR Is About What HONEUR Is About custom...

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ITEM CODE: CP-241082 | DATE OF PREPARATION: JUNE 2021

ITEM CODE: RF-243987 | DATE OF PREPARATION: NOVEMBER 2022

We are proud to share with you that we currently have over 56.000 patients from 12 HONEUR sites mapped in the HONEUR network. Nearly 43.000 of these are multiple myeloma patients. Of the total...

We are excited to inform you that our study abstract on lenalidomide exposed RRMM patients has been accepted for poster presentation at the 64th annual ASH Conference in December 2022! Using...