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What HONEUR Is About

ITEM CODE: CP-502242 | DATE OF PREPARATION: FEBRUARY 2025

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This Q&A has been prepared to answer questions about HONEUR and related topics.

Real World Data and Real World Evidence – What’s the difference? Real World Data (RWD) is health data, usually created by healthcare professionals and also by patients, as part of routine health...

HONEUR’s principles Do you want to know more about HONEUR’s network principles? Check it out here.

RWE in practice Sweden – Since 1998, Sweden's national Cataract Registry has collected nationwide data on postoperative endophthalmitis (PE), which, although rare, results in blindness in between...

Our Mission To create a secure, collaborative platform that enables participants across Europe to liberate the transformational potential of Real World Data. Our Vision We want to help create a...

Join the network To join the HONEUR network, only few prerequisites are needed. Basically, any registry, hospital, physician association or any scientific institute with a dataset on patients with...

What is HONEUR? HONEUR stands for Haematology Outcomes Network in Europe. Historically, the network of data centres across Europe has often been duplicative and uncoordinated, so the...

Real World Data is critically important RWD is very different from data gathered in clinical trials. In clinical trials, strict basic conditions are applied to allow for the best comparability...

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Not found the answer you are looking for? Please contact Lars Halvorsen and / or Peter Moorthamer for all your HONEUR related technical questions.

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COVID-19 Update

We are pleased to announce that the first site was contracted to the HONEUR network: Leicester Royal Infirmary is represented by Dr Mamta Garg, who is actively involved in research and functions as...

Our abstract “HONEUR (Haematology Outcomes Network in Europe) – A Federated Model to support Real World Data Research in Haematology” has been accepted at the Congress of the American Society of...

We are pleased to announce that we have signed the accession agreement to project HONEUR with Prof. Hajek from the Registry of Monoclonal Gammopathies (RMG) in the Czech Republic. The RMG, which is...

Improving results for patients by realising the transformational potential of Real World Data BEERSE, BELGIUM, 11 April 2019 - The Janssen Pharmaceutical Companies of Johnson & Johnson have...

HONEUR’s new Interactive Patient Similarity Analysis and Visualisation Tool was accepted and published at EHA’s (European Haematology Association) 25th annual congress in June 2020. As every...

We're delighted to welcome six more data partners to join the HONEUR collaborative network of he Janssen Pharmaceutical Companies of Johnson & Johnson. HONEUR (Haematology Outcomes Network in...

Objective: enabling the use of distributed statistics across federated data models

News

CP-73766

What is HONEUR? Treating patients with haematological malignancies has progressed significantly in recent years, but extensive scientific research is still needed. Fortunately, there’s a huge...

Our mission With HONEUR, we have created a secure, collaborative platform that enables partnering data centres across Europe, including Janssen, to liberate the transformational potential of...

Accelerated real-world data analysis and evidence sharing Federated network connectivity, data always stays local

How it works As shown below, each of the data partners in this example has the applications in place to interrogate their own data or to execute an analysis script that is developed centrally by...

How to become an HONEUR data partner HONEUR’s goal is to develop a network with diverse geographic coverage across Europe. Any registry, hospital, physicians’ association or scientific institute...

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Federated data network of haematology centres: Centres maintain control of their data. Respect the rights of the individual: Data privacy (e.g. GDPR). Highest standards of ethical rigour: Ethics...

Privacy policy Janssen Phamaceutica N.V. cares about your privacy and wants you to be familiar with how we collect, use, and disclose information. This Privacy Policy describes our practices in...

Core principles HONEUR optimises how Real-World Data are analysed to speed-up the generation of Real-World Evidence HONEUR data partners share real-world insights that can contribute to...

Our investment in real world data Our compensation is based on Fair Market Value (FMV) and consists of three pillars: SET UP REMUNERATION When you join the network, we compensate your IT-based...